Saturday, August 27, 2016

August Meeting

Sorry for the delay in posting about the August meeting.  As always, we discussed ideas for increasing awareness about hydrocephalus, as well as the meeting.  I'd love to see us get back to having an annual picnic.  It would also be great to be able to do some additional promotions.

I'm hoping that increasing our presence on Facebook will help.

I'll have to cut this short for now.

Monday, July 11, 2016

July Meeting

The July Meeting will be held in the Casey Conference Room at Swedish Hospital's Cherry Hill campus (17th & E . Jefferson, Seattle) , from 12:45 pm to 3 pm.  We offer moral support and information to families, friends, caregivers and those (of all ages) living with the condition of hydrocphalus.  Drop ins are welcome.

Great way to start off the summer!

Thursday, June 16, 2016

June Meeting

This Saturday (June 18) will be this month's meeting.  Sorry about having to cancel last month's meeting.  As usual, we will be in the Casey Conference Rm at Swedish Cherry Hill campus from 12:45 pm to 3:00 pm.

Part of the reason for last month's cancellation was my arm injury.  I dislocated my left arm in an accident in the Safeway parking lot.  It involved our car, a lock on one of the doors, a shopping cart and a pointed curb.  I got a dislocated shoulder, black eye, sprained wrist & sprained knee out of it.  Just got rid of the sling today and I start physical therapy tomorrow.

I do want to say that the Seattle Fire and the EMTs did a great job.

I've been keeping up with my Facebook page and the LinkedIn page.

Fortunately (?), now I have the ability to be on the computer a bit longer than I was there for awhile.

I look forward to seeing everyone on Saturday!

Thursday, May 19, 2016


The May meeting has been cancelled,  Kim is preparing for a convention out of state and I was injured last week.  Sorry for the inconvenience.  Looking forward to the June meeting,.

Sunday, April 10, 2016

April Meeting Announcement

Hard to believe that we are already looking at the April meeting already!!  It will be on the 16th, from 12:45 pm to 3:00 pm, in the Casey Conference Room at Swedish Hospital's Cherry Hill campus (17th & Jefferson, Seattle).  Drop ins are welcome.

We offer moral support and information to families, friends, caregivers and those (of all ages) living with the condition of hydrocephalus.

Looking forward to seeing everyone!

Thursday, March 17, 2016

2016 UW Brain Awareness Open House

2016 Brain Awareness Open House

Another successful year's event!  Thanks to all who attended (Dave, Frank, Kim & Bobbe), as well as the students, parents and educators.  Everyone I spoke with had a good time.

We had lots of interest in the shunt display, thanks to Dave from Medtronic.

There were a lot of inquisitive kids out there, not just interested in the 'free' stuff we had to hand out.  It was great talking with kids who really wanted to know about hydrocephalus and what it was like to live with it.

Looking forward to 2017 already!

Friday, March 4, 2016

Preparation For Brain Awareness

The booth for Brain Awareness is coming together.  It promises to be another rewarding year.  We got a box from the Hydrocephalus Association (HA), which is always helpful.  We have at least one rep from the shunt manufacturer, Medtronic attending, plus members of the support group.

The estimate is 700 or so kids (grades 4-12), plus parents and teachers.  Our exhibit should be full of information and lots of information from those of us living with the condition.

I'm also bringing the educational doll along.  This year the doll has a whole new wardrobe and a stroller, so transporting it will be much easier than previous years.  It is always a great conversation starter, wherever it goes.  We've started dialog with police officers, social workers and lots of others seeing it.  It DOES look very real and has been mistaken for an actual baby!

We will be having our monthly meeting on the third Saturday of March, which is the Saturday after Brain Awareness, which will be nice.  I'm sure that we will have a lot to talk about.