Monday, April 20, 2015

Here We Go Again...

Here we go again, with first responders having no clue about spinal cord or head injuries.  The Baltimore PD now faces hot water, as they should, for the internal decapitation death of one of their citizens because of a total disregard or awareness of such a condition.  Frankly, even EMTs have a difficult time determining an internal decapitation, but the fact is, nothing was done to prevent such an injury and looking at the video, the officers on the scene don't seem to be aware of the possibility of such an injury.

I appreciate the difficulty of their job, but first responders need to have a healthy respect for the spine and brain.  They need to appreciate that injuries to these areas are potentially fatal or could be life altering.  Prevention is the only way to stop the kinds of life altering injuries that take someone from being able to pursue their dreams to someone who's dreams have to be altered to fit a 'new normal' that simply didn't have to happen.

I've seen accounts of two incidents in the last week alone where severe, closed head injury (TBI) has been ignored and first responders have only gone by someone's actions on the surface.  The man who was walking down a Texas highway naked (except for his cowboy hat) had been in a car accident.  It isn't unusual for someone with a traumatic brain injury, particularly a closed head injury, to do things like strip off their clothes.  Or, as apparently happened with the young man in Baltimore, he became agressive.  Both are not uncommon responses to a head injury.  Taking these actions as conscious decisions on the part of the victim(s) only shows how little these folks have, in terms of training.  Piling on top of someone with such an injury can also just make the injury worse.

Sunday, April 19, 2015

April Meeting

The April meeting was very productive.  It was great having one of our out of state members being part of a conference call for part of the meeting.  Always a lot of great discussion and input.

I brought the hydrocephalus doll along so Kim & her mother could take it to a health fair today in the Lacey/Olympia area.  As always, there were a few second looks & a comment or two.  One said that it was a cute baby!  Another double take was from one of the neuro staff.  Fingers crossed that the health fair goes well.

At least I'm not alone in taking issue with the Durst letter and comment about having "full blown hydrocephalus".  In some of the footage I saw of him, it is quite possible he has NPH, but that has no bearing on his mental health as it relates to the possibility of him being a murderer and using it as part of some 'insanity' defense.  We all agreed that the implication is a very negative one that needs to be cleared up.

We talked a bit about issues with doctors, GPs as well as specialists.  A common topic for us.

I brought up a speaker I saw last Friday.  My mother & I went to a lecture at one of the Assisted Living facilities in town.  The speaker was a neurologist who specializes in tremors.  The lecture was quite interesting.  It would be great if we could find a way to have him speak at a meeting or at a symposium sometime.  The other nice thing was seeing how educated many of the attendees were on brain health!

Saturday, April 11, 2015

April Meeting/Durst "I Have Full Blown Hydrocephalus"

Looking forward to the April meeting on Saturday, April 18th, from 1:00 pm to 3:00 pm in the Casey Room at Swedish Hospital's Cherry Hill campus (17th & E. Jefferson, Seattle).

One topic we will be discussing will be this week's 'revelation' about Robert Durst having (in his words) "...full blown hydrocephalus" Whether his defense team is going to try spinning this as part of an insanity defense isn't clear.  I'm hoping that isn't the case, since hydrocephalus isn't relevant to any aspect of murdering people.  Insanity and hydrocephalus aren't related.  Hydrocephalus isn't 'insanity' and what a great disservice to the hydrocephalus community if they are even entertaining such a notion.

I will also be bringing along the hydrocephalus doll this month.  It will be used the following week at a health fair in the Olympia area.