Friday, September 4, 2015

National Hydrocephalus Awareness Month--Is Here!

Hard to believe it is already National Hydrocephalus Awareness Month!  We have been talking about an array of possible ways to attract attention the cause this month.  A couple of them involve getting group tickets so we can showcase hydrocephalus.  So we are looking for supporters and those living with hydrocephalus to help in the efforts to raise awareness.

This month's meeting will be on the 19th, from 1-3 pm in the Casey Conference Room at Swedish Hospital's Cherry Hill campus.  Drop ins are welcome, as well as families and anyone with an interest in finding out more about the condition of hydrocephalus.

Many aren't aware that hydrocephalus can be acquired at any age, through numerous causes.  This includes traumatic head injury (TBI), brain tumors, car/bike accident or even spontaneous (normal pressure hydrocephalus) which is often misdiagnosed as Parkinson's or Alzheimer's.  So it isn't limited to congenital hydrocephalus, which is often part of spina bifida.  Because there are so many causes, there can never be a one-size-fits-all 'cure' for the condition (it isn't a disease, although condition & disease are often used interchangeably).

The journey of life with hydrocephalus can be a bumpy one, but the majority of us still see our lives as productive, interesting & welcome the challenges that it provides.

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