Showing posts with label anencephaly support groups. Show all posts
Showing posts with label anencephaly support groups. Show all posts

Thursday, August 20, 2015

Looking for volunteers for National Hydrocephalus Awareness Month in September



We have a couple of ideas to help in raising awareness of hydrocephalus in September and are looking for volunteers to help out. 

Friday, May 16, 2014

An Apology



My Apology For Spelling Error


My apology for the spelling error in the previous post.  I misspelled anencephaly.

Changing subjects a bit, I have been contacted with a question about support groups (specifically in eastern Washington state) for parents of anencephaly babies.  We couldn't find anything in our searches.  Anyone knowing of an existing group, or interested in starting one can contact us.