Thank You, Dick Wolf & Chicago Med!!

Loved the November 24th episode of Chicago Med!  They had a story about an older woman, believed to have dimentia, who turned out to have Normal Pressure Hydrocephalus (NPH).  In addition, they got the facts right!  Sadly, it is true that eighty percent of NPH cases aren't diagnosed.  They are most often written off as having Parkinson's, Alzheimer's or some form of dimentia, so they go untreated.  No need to create drama where it naturally exists.  Only wish they had shown the installation of the shunt.  No one is perfect.

Another aspect of the story I loved was showing the woman on her way to living a full life afterwards.  It was also great showing the spouse's side of things.

The only other show that has done an excellent job with telling a hydrocephalus story has been Gray's Anatomy (Thanks, Shonda Rhimes!).  Showing us not 'suffering' with our condition, but living full lives is always something to be embraced and celebrated.

Last Saturday's meeting was great.  It was small, with some members being out of town early for the holiday.  We talked about what is going on with us this month.  We also had a conference call with one out of town member.  Another topic of discussion was ideas for the 2016 Brain Awareness event.  That is tentitively going to be in March, 2016.

Heading The Ball

I saw an interview with Dr. Cantu recently, concerning the heading of balls in soccer.  While I was glad to see Dr. Cantu interviewed, in general, everyone else missed the point of the concern around this part of soccer.

It isn't that heading the ball itself is going to necessarily cause a concussion, but it DOES cause problems in the frontal lobe region, especially for children.  The brain isn't meant to be rocking back and forth in the skull.  The cerebral spinal fluid, which surrounds the brain, helps to protect the brain, but it doesn't make bruising or impacts to the brain itself impossible.  The inner part of the skull is rough and bumping the brain itself against it can cause bruising, bleeding and even short term damage that isn't readily apparent.  Some of that damage may be cumulatively damaging.

Dr. Richard Ellenbogen, neurosurgeon, has also been interviewed on the subject of concussions.  While it is quite possible for someone, specifically a child, to acquire a concussion through a bike accident, it is also possible to acquire a condition, like hydrocephalus, from such an accident.

There have been soccer players who have talked about 'safe' heading of the ball in soccer in the past, who have more recently altered their position, agreeing that there is no 'safe' heading of the ball, especially for kids who's brains are still developing.  There is still so much that is unknown about the brain and its development.

November Meeting: Happy Thanksgiving!

As always, it seems like only yesterday we were looking at the October meeting coming up.  Doesn't seem like November is here already!  This month's meeting will be held on the 21st, from 12:45 pm to 3:00 pm in the Casey Conference Room at Swedish Hospital's Cherry Hill campus (17th & Jefferson, Seattle).

Friends, family members, caregivers and those, of all ages, living with the condition of hydrocephalus are welcome to attend.  Drop ins and kids are welcome.  We will be having one or two members calling in during the meeting.

Hope everyone has a great Thanksgiving.

VIOLENCE IN THE CLASSROOM...

Here we go again! The S. Carolina 'resource' officer was fired for his over the top response to a CHILD being "non-compliant".  People have said that there are consequences for your actions and that is precisely what has happened here.  The officer, thankfully, isn't going to be "retrained" or moved to another situation. 

There is a reason why choke holds are illegal in many states, especially for police.  It further endangers the suspect and can lead to brain injury or death.  The same can be said about throwing someone across the room.  There can also be spinal injury, which can lead to a situation, like acquired hydrocephalus.  Anything that disrupts the flow or production of the cerebral spinal fluid (csf) has the potential to cause dangerous accumulation of pressure around the brain.

I don't care if the child, any child, hit an officer.  That is a ticketable offense, not something that rises to the level of this kind of violence.  We had a situation here a few years ago where an officer used excessive force on a teenage girl who threw a shoe at him and, supposedly, said something nasty about his "mother".  That officer also body slammed the teen, only this was against a cement wall.  He was the adult--the TRAINED adult.  The same with this situation.

So this officer apparently lives with a black woman.  Big deal.  Who is to say he doesn't toss her around the house from time to time.  I think it is fair to say that he out weighs said girlfriend and if he blows up because of a backtalking teen and has a history of overreaction/excessive force, then it isn't much of a stretch to theorize that he takes those behaviors home.

There needs to be more logic applied to how everyone, from the teacher in the classroom to the Principal of the school handles these kinds of situations.  Not to mention finding good officers for resource work who aren't hotheads with bad judgement.  I've said this before, this is also about how officers are trained.  Many, fortunately not most, don't have proper regard for the damage they can do that will take a productive (or potentially productive) person and make them vegetables, or worse.

I don't care what this particular child said or did.  It didn't rise to the level of the response that was taken, by anyone.  Also, I find it disturbing that a school that knew about this resource officer's behavior condoned it and let it continue!  Parents send their kids to school for an education, not to be terrorized.

October, 2015 Meeting

The October meeting was small, but very productive.  We had one conference call with Kim--she was out of state this month.

We did talk about 'Stir' and that led to talking about making adjustments to life when things suddenly change.  I really hope that more people read this book and that it opens a dialog with families about sudden changes in life and how we deal with it.  I do think that I came to this book with a very different experience than, say, my mother.  She had a whole different experience as the single parent dealing with the 'professionals' and a young child with challenges.

We also discussed ways to increase visibility in the community, as well as increase membership.  Unfortunately, we know that there are still people who keep hydrocephalus a secret or who feel alone in their experience.  It is far more common than they may have been led to believe.  One thing all of us do is remind folks that we meet on the third Saturday of each month from 12:45pm - 3:00 pm in the Casey Conference Room.  No reservations are required and kids are welcome to attend.

We are, as always, also looking for more 'stuff' to include in our booth at Brain Awareness Week's open house, usually held in March.  The date and time are to be announced.  But, again, as always, I'm planning the next one even before the present one is under way! 

CTE also came up as a topic of discussion, as it often does.  Hydrocephalus never seems to be part of the CTE discussion, in a general sense.  But it is often discussed at our meetings, because one way of acquiring the condition is through traumatic brain injury (TBI).  With the recent deaths of some high school students in Washington state and the definitive report on the cause of former NFL player, Adrian Robinson, Jr., it was bound to be discussed by us again.

Looking forward to the November meeting.  Hoping to see both new and familiar faces.

ANOTHER DIAGNOSIS OF CTE AFTER EX-NFL PLAYER SUICIDE--SO SAD

Just saw the news online about Adrian Robinson, Jr.'s post-mortem diagnosis of CTE at only 25 yrs old!  So sad.  So avoidable.  Such a tragedy.

With every article we see the same general information.  Players who played hurt and decisionmakers who failed to take concussions seriously.

I'm sure that this will be a topic of discussion at the meeting on Saturday.

Reminder: October Meeting on 10/17

Just a quick reminder, this Saturday (10/17) will be the October meeting, from 12:45 pm to 3:00 pm in the Casey Conference Room at Swedish Hospital's Cherry Hill campus (17th & Jefferson, Seattle).  Drop ins & kids are welcome.  It should be an interesting meeting.  Some members will be calling in and we'll be talking about 'Stir'!