Sunday, October 18, 2015
October, 2015 Meeting
The October meeting was small, but very productive. We had one conference call with Kim--she was out of state this month.
We did talk about 'Stir' and that led to talking about making adjustments to life when things suddenly change. I really hope that more people read this book and that it opens a dialog with families about sudden changes in life and how we deal with it. I do think that I came to this book with a very different experience than, say, my mother. She had a whole different experience as the single parent dealing with the 'professionals' and a young child with challenges.
We also discussed ways to increase visibility in the community, as well as increase membership. Unfortunately, we know that there are still people who keep hydrocephalus a secret or who feel alone in their experience. It is far more common than they may have been led to believe. One thing all of us do is remind folks that we meet on the third Saturday of each month from 12:45pm - 3:00 pm in the Casey Conference Room. No reservations are required and kids are welcome to attend.
We are, as always, also looking for more 'stuff' to include in our booth at Brain Awareness Week's open house, usually held in March. The date and time are to be announced. But, again, as always, I'm planning the next one even before the present one is under way!
CTE also came up as a topic of discussion, as it often does. Hydrocephalus never seems to be part of the CTE discussion, in a general sense. But it is often discussed at our meetings, because one way of acquiring the condition is through traumatic brain injury (TBI). With the recent deaths of some high school students in Washington state and the definitive report on the cause of former NFL player, Adrian Robinson, Jr., it was bound to be discussed by us again.
Looking forward to the November meeting. Hoping to see both new and familiar faces.